Missed call

Ca 19-9 levels went up

3/21/16. 5,372

4/18/16. 24,729

We missed a call from Dr sahai. He wants to talk to us on monday.

April 18, 2016 Checkup

Good news! Everything is stable since the last scan. 

Doc said "keep doing what you are doing and I'll see you in 10 weeks"

We are still trying to figure out the constipation issues.  
Brian was given Movantik.  (24 hours later: No change other than 20 hours of extra pain)

Brian did get blood work done for genetic testing today but we will not get the results for 4-6 weeks.  

New Findings

• We spent about 6 hours in the ER today. All his blood work came back fine. There is still moderate stool in his colon. He was given 3 mg of dilauded and it did not help. So they gave him 25 mg of ketamine. It helped. Weird though, he was dreaming while he is awake..

  They sent us home with an rx for dilaudid pills and we are to follow up with his primary and oncologist. They do not know what is wrong. (other than the obvious)

  
  

  We were also given the CT summery. It has spread to his lungs. There is a 3 mm nodule in his lung. The nodule in his liver is 1 cm. I am not sure about the pancreatic tumor. We will have more detailed, concrete information next week.

  
  

  I went online to our patient portal and read last February's report and it looks like that is when they knew about the lungs but did not tell us. I don't understand that.... You can bet I'll be asking why I wasn't told though.

  
  

  
  

Postponed

The Ann arbor trip has been postponed to the 18th. Mercy has not yet sent the CT scan over to Ann arbor so it would be pointless for us to go until they have that and can give us the results along with the blood test results...  So we are going into the ER today.  We are going to go to the ER at Mercy, where we usually go anyway, and hopefully someone can look at the CT scan and let us know what the hell is going on. 

FYI: we have to get the CT scans done locally from now on because Brian's insurance comoany does not cover radiology at U of M anymore.

Pain

Brian has been in nonstop pain for the last month. He gets a new CT scan on Friday and we see the oncologist on the 11th. We are anxious to find out what's going on..

Checkup with Campbell

Ca 19-9 is 5372

An xray was done on his abdomen to check for an obstruction. Thankfully there is not one so we just need to get his constipation under control then we will be getting new blood work in 3 weeks. 

We are not upset about the new number because over the last couple of weeks bri has not done as much of the treatments as he should have bc he was not feeling up to it.

Stent change

Brought Bri to the er yesterday and they kept him overnight. He is now (3/1/16 1:00pm) prepped and ready to have his stent replaced. 

HAHA. Bri just said to me..

Ugh, I've been bored for two days!  Ive almost been here 24 hours!

Update 4:42pm

Everything went great. The stent was not replaced but was plugged and so it was cleaned out. He can go home after he is more awake and alert. He will need a couple of days to rest and recover.