No More Chemo

There will be no more chemo.
Brian will be following The Budwig Diet.

Tough choices to make..

We got a call from Dr Sahai

The U of M specialists went over the ct scan and found that the mass on Brians pancreas is larger and "choking" his main artery. 

He also has some blood clots, one is in his main artery. Im not sure where the other two are. 

Dr Sahai wants Bri back on chemo right away. 

Brian and I have not made a concrete decision on what we will do for treatment at this point.
He has been quite sick and throwing up every day.

Missed call

Ca 19-9 levels went up

3/21/16. 5,372

4/18/16. 24,729

We missed a call from Dr sahai. He wants to talk to us on monday.

April 18, 2016 Checkup

Good news! Everything is stable since the last scan. 

Doc said "keep doing what you are doing and I'll see you in 10 weeks"

We are still trying to figure out the constipation issues.  
Brian was given Movantik.  (24 hours later: No change other than 20 hours of extra pain)

Brian did get blood work done for genetic testing today but we will not get the results for 4-6 weeks.  

New Findings

• We spent about 6 hours in the ER today. All his blood work came back fine. There is still moderate stool in his colon. He was given 3 mg of dilauded and it did not help. So they gave him 25 mg of ketamine. It helped. Weird though, he was dreaming while he is awake..

  They sent us home with an rx for dilaudid pills and we are to follow up with his primary and oncologist. They do not know what is wrong. (other than the obvious)

  
  

  We were also given the CT summery. It has spread to his lungs. There is a 3 mm nodule in his lung. The nodule in his liver is 1 cm. I am not sure about the pancreatic tumor. We will have more detailed, concrete information next week.

  
  

  I went online to our patient portal and read last February's report and it looks like that is when they knew about the lungs but did not tell us. I don't understand that.... You can bet I'll be asking why I wasn't told though.

  
  

  
  

Postponed

The Ann arbor trip has been postponed to the 18th. Mercy has not yet sent the CT scan over to Ann arbor so it would be pointless for us to go until they have that and can give us the results along with the blood test results...  So we are going into the ER today.  We are going to go to the ER at Mercy, where we usually go anyway, and hopefully someone can look at the CT scan and let us know what the hell is going on. 

FYI: we have to get the CT scans done locally from now on because Brian's insurance comoany does not cover radiology at U of M anymore.

Pain

Brian has been in nonstop pain for the last month. He gets a new CT scan on Friday and we see the oncologist on the 11th. We are anxious to find out what's going on..